Members
Priscilla Wong
Sarah Ohrndorf
Marina Backhaus
Isabelle Chary-valckaenere
Lene Terslev
Annamaria Iagnocco
Paz Collado
Cristina Hernandez-Diaz
Esperanza Naredo
Wolfgang Schmidt
Sandrine Jousse-Joulin
George Bruyn
Soeren Torp-Pedersen
Stavros Chrysidis
Georgios Filippou
Christian Dejaco
Martin Stradner
Florentin Vreju
Mohamed Mortada
Alojzija Hocevar
Frederique Gandjbackh
Stephanie Finzel
Giorgio Tamborrini
G. Mardenly
Juan jose de Agustin
Ralph Thiele
Daryl MacCarter
Petra Hanova
Alen Zabotti
Cornelia Glaser
Daniel Hammenfors
Ender Terzioglu
Nevsun Inanc
Sulaiman Al-Habib
Ahmed Abogamal
Ahmed Negm
Florin Vreju
Ingrid Möller
Luca Seitz
Ertugrul Cagri Bolek
Emre Bilgin
Sjögren
Working group OMERACT > Sjögren
MENTOR:
c pineda
Convenors: S Jousse-Joulin, G Bruyn
Website responsible: S Jousse-Joulin
Objective of the subgroups work:
To establish the role of US
1. To detect echo structural abnormalities in primary Sjogren syndrome patients (pSS)
2. To establish a consensual definitions of elementary lesions
3. To establish a consensual scoring system to evaluate echo structural lesions in Sjogren patients
4. To monitor treatment using ultrasound in pSS patients
5. To guide parotid gland biopsy with US
What is the contribution of the subgroup work to the OMERACT work?
To standardize the scanning technique and definition used for the US assessment in pSS patients
To agree on which US elementary lesions should be included as disease activity assessment in pSS
To agree on which vascularization scoring should be used during US assessment in pSS
Description of the previous work
This subgroup was founded in June 2016.
A systematic literature search using the PubMed, Embase and Cochrane Library databases for studies using US in assessing Sjögren were extracted and studied.
A DELPHI exercise on US elementary lesions was done and presented (EULAR MADRID 2017)
A reliability exercise on US pSS videos has been done (paper in submission)
A reliability exercise on patients has been done in Freiburg (paper is under construction)
Reporting back of work done since ACR 2017
Next steps and discussion points
Photography of normal vascularization in healthy people.