Members

Sarah Ohrndorf

Marina Backhaus

Isabelle Chary-valckaenere

Lene Terslev

Annamaria Iagnocco

Paz Collado

Christina Diaz

Esperanza Naredo

Wolfgang Schmidt

Sandrine Jousse-joulin (lead)

George Bruyn (mentor)

Soeren Torp-Pedersen

Stavros Chrysidis

Georgio Filippou

Christian Dejaco

Martin Stradner

Florentin Vreju

Mohamed  Mortada

Alojzija Hocevar

Frederique Gandjbackh

Stephanie Finzel

Giorgio Tamborrini

G. Mardenly

Juan jose de Agustin

 Ralph  Thiele

 Daniel  McCarter

Petra Hanova

Alen  Zabotti

Cornelia Glaser

Daniel  Hammenfors

Ender Terzioglu

Nevsun Inanc

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Sjögren

Working group OMERACT > Sjögren

 

MENTOR:

George Bruyn 

Objective of the subgroups work

To establish the role of US

1.   To detect echo structural abnormalities in primary Sjogren syndrome  patients (pSS)

2.   To establish a consensual definitions of elementary lesions

3.   To establish a consensual scoring system to evaluate echo structural lesions in Sjogren patients

4.   To monitor treatment using ultrasound in pSS patients

5.   To guide parotid gland biopsy with US

What is the contribution of the subgroup work to the OMERACT work?

To standardize the scanning technique and definition used for the US assessment in pSS patients

To agree on which US elementary lesions should be included as disease activity assessment in pSS

To agree on which vascularization scoring should be used  during US assessment in pSS

 

Description of the previous work

This subgroup was founded in June 2016.

A systematic literature search using the PubMed, Embase and Cochrane Library databases for studies using US in assessing Sjögren were extracted and studied.

A DELPHI exercise on US elementary lesions was done and presented (EULAR MADRID 2017)

A reliability exercise on US pSS videos has been done (paper in submission)

A reliability exercise on patients has been done in Freiburg (paper is under construction)

 

Reporting back of work done since ACR 2017

 

Next steps and discussion points

Photography of normal vascularization in healthy people.